Wednesday, December 2, 2009

Thankful.....

Let me just start by saying I'm sorry for not updating more. I have resolved to be better about this, everything has just been a little crazy.

We have learned a little bit more regarding his condition. It has been caused by a renal artery embolism. The embolism basically cut off blood flow to the kidney. This caused a infarction of the kidney. In simpler terms, caused the kidney to begin to die due to lack of blood flow. The radiologists involved believe that the infarction presented itself within 2-3 weeks, which is why only the blockage showed up on the MRA. Unfortunately, it was misdiagnosed as narrowing of the artery rather than an embolism blocking the artery.

We will finally be meeting with the Pediatric Urologist who is going to be performing the surgery this wednesday. We have been unable to get any answers from anyone since the diagnosis, so this is a much anticipated appointment. All attempts for second opinions have failed so far so we may have to trust the diagnosis and move forward with the surgery which is tenatively scheduled for January 4Th right now.

Kaleb has been doing really well given the circumstances. He has been really tired though, most likely due to his blood pressure dropping to somewhat normal. And he seems to be catching every cold that is going around. He is not looking forward to the appointment on Wednesday. He is sick of going to all of the appointments and being poked and prodded with all of the needles and IVs. Can't say I blame him, he has been such a brave little boy through all of this.

I am just thankful that the embolism was not in his brain, heart or lungs. I'm just looking forward to the time when he is a healthy happy child again. He deserves to have the innocence of his childhood back. That is something that has been somewhat taken from him at this point. At 4 years old he shouldn't have to be worried about needles everytime he is picked up early from preschool.

I just pray this will go as easily and quickly as it can for him so he can get back to being a little boy. It still doesn't seem real, it sets in a little more each day though. I'm pretty sure it will set in after the appointment with the surgeon. Thank you for all of your thoughts, prayers and support, we need all we can get and really appreciate it!!!

Christi :)

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